National initiatives to improve care for limb loss: The National Limb Loss and Preservation Registry

Health systems play a major role in providing coordinated care to optimize long term outcomes for this population. National-level data from multiple stakeholder perspectives is vital to support this journey but has been lacking until recently for the non-Veterans population. The national Limb Loss and Preservation Registry (LLPR) has been developed over the past decade to address this knowledge gap. LLPR is an organized system designed to make critical data on limb loss, limb preservation, and limb difference available to hospitals, clinics and individual providers, patients, manufacturers, payers, scientists, clinical researchers, and policy makers. The objective of LLPR is to collect, standardize, and report patient outcomes data, support evidence-based decision making, enhance health care delivery, and establish and disseminate best practices. Hence, LLPR has major practice, payor and policy and research implications. LLPR is seeking participation from limb care practices and stakeholder organizations to expand its outreach and ultimate impact.