NTR
CLIN
SW/PSYCH
Elizabeth Reid, MS, RD
Children's Hospital of Philadelphia
Catherine McDonald, PhD, RDN, CSP
Cystic Fibrosis Outpatient Clinic
Primary Children's Hospital
The nutritional state of individuals with CF has evolved over the years, ranging from almost universal prevalence of malnutrition and poor growth, to the current picture of diverse outcomes of undernutrition to obesity. Advances in the understanding of CF genotypes and phenotypes, early diagnosis through newborn screening, as well as therapeutic interventions including CFTR modulators have underscored the importance of individualizing overall CF care including medical nutrition therapy. Experience with different nutrition approaches and CF is evolving. Both pwCF and healthcare providers need to pivot to address novel weight issues. Healthcare providers need to broaden their assessment and intervention skills. Evidence-based approaches exist for weight management for the general population, but evidence is lacking for pwCF. Opportunities abound for determining effective and personalized weight management and nutrition approaches in partnership with pwCF.
Changes in the demographics of nutritional status for pwCF will be discussed. This session will present the impact of weight stigma from the patient perspective and provide tips for clinicians to partner with pwCF around personal nutrition goals. Current evidence for different approaches to nutrition management will be reviewed with potential applications to CF medical nutrition therapy. Topics will include emerging dietary trends for weight management, medical and surgical intervention for obesity, weight neutral and non-diet approaches to nutrition care, and the importance of exercise and physical activity as a pillar of overall health, including weight.
This session will also include a pro-con panel discussion on the topics presented including medical and surgical management, intensive behavior therapy, weight neutral approaches, traditional weight management, and comprehensive lifestyle change intervention for overweight and obesity for pwCF.
Speaker: Jordan H. Robison, MS, RDN, CSO, LD (she/her/hers) – UMC Health System
Speaker: Virginia Stallings, MD – Children's Hospital of Philadelphia
Speaker: John D. Lowman, PhD, PT, CCS – University of Alabama at Birmingham
Speaker: Kimberly A. McBennett, MD, PhD – Case Western Reserve University