NRS
SW/PSYCH
Katie Whitley, RN, BSN
Phoenix Children's Hospital
Heidi Krauss, MSW, LCSW
Northwestern University, Northwestern Memorial Hospital
This session will review a multitude of ways that the CF care team can help advocate for patients with CF or empower them to advocate for themselves throughout their lives. This will include an overview of disability criteria, required clinical documentation for patients on disability and challenges in remaining eligible for benefits after starting HEMT. Attendees will also have the opportunity to learn about the different types of legal protections and accommodations within the public education system and the workplace which can help patients have a successful school/work experience while also adequately managing their health needs. In addition attendees will learn about vocational rehab and how this resource can further prepare CF patients for success when entering the workforce.
Speaker: Sarah K. Strong, MEd – Cincinnati Children's Hospital
Speaker: Pablo Saldana, PhD, LCSW – Nemours Children's Health
Speaker: James A. Passamano, JD, LLM – Sufian & Passamano LLP
Speaker: Beth S. Sufian, JD – Sufian & Passamano, L.L.P.