Lead parent partner
Family Voices
Ms. Hoover is a parent of a child with special health care needs with decades of lived experience as a family partner in research. She is lead parent partner in the CYSHCNet national health systems research network. She started advocating for patients, families, and quality healthcare shortly after her daughter’s diagnosis with cystic fibrosis in 2005. She served first as family faculty for residents and nursing students and later joined or co-founded three Advisory Councils supporting family-centered care at the University of New Mexico Hospital and Health Sciences Center. Her professional interests center on patient and family roles in family-centered care and community based research, and on patient and family engagement and capacity building.