Symposium

Pediatric Rehabilitation

Brain Injury

Caregiver Needs

Clinical Practice (assessment, diagnosis, treatment, knowledge translation/EBP, implementation science, program development)

Medical Professional & Educator Perspectives on Caregiver Experiences after Pediatric TBI

Friday, November 11, 2022

11:00 AM – 12:15 PM

Presenter(s)

Jennifer P. Lundine, PhD, CCC-SLP

Associate Professor; Clinical Researcher
The Ohio State University; Nationwide Children's Hospital
Columbus, Ohio, United States

Slides
Angela H. Ciccia, PhD,CCC-SLP

Associate Professor
Case Western Reserve University
Cleveland, Ohio, United States
Christine Koterba, PhD, ABPP

Pediatric neuropsychologist
Nationwide Children’s Hospital
Columbus, Ohio, United States
NV

Nicole Viola, M.S.

PhD Student
The Ohio State University, United States

A substantial body of research has described the persistent, long-term challenges and gaps in care provision faced by children with TBI, but little research focuses on stakeholder-driven methods to mitigate these challenges. This project revisits themes identified from 20 caregivers who shared their perspectives on care for their child with TBI and introduces new findings from 5 focus groups that included 29 medical providers and educators. Based on themes identified in caregiver interviews, focus group participants identified potential changes to clinical care in response to caregiver perspectives. Future steps for clinical care and research will be discussed.

Learning Objectives:

Describe the themes generated from caregivers related to pediatric TBI in regards to their experience with long term management
Describe the themes generated from medical providers and educators related to caregiver experiences
Describe future directions for research and clinical care to improve the long-term outcomes for children with TBI, based on findings from this study