12S105: Action Council: Pathway of Patient Engagement in Rheumatology Research Review and Implementation

Saturday, November 12, 2022

11:00 AM – 12:00 PM Eastern Time

Location: Room 103

CE: 1

All of the relevant financial relationships listed for faculty have been mitigated.

Panelist(s)

TW

Tiffany Westrich-Robertson, BS

CEO
International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis)
St. Louis, MO, United States

Disclosure(s): No financial relationships with ineligible companies to disclose

Moderator(s)

Kaleb Michaud, PhD

University of Nebraska Medical Center
Omaha, NE, United States

Disclosure(s): No financial relationships with ineligible companies to disclose

Panelist(s)

Md

Maarten de Wit, PhD

Chair EULAR study group for collaborative research
Zaltbommel, Netherlands

Disclosure(s): No financial relationships with ineligible companies to disclose
CH

Clayon Hamilton, PhD

Disclosure(s): No financial relationships with ineligible companies to disclose
CK

Cheryl Koehn, MS

Arthritis Consumer Experts
Vancouver, BC, Canada

Disclosure(s): No financial relationships with ineligible companies to disclose

Discovering ways to develop patient-included rheumatology research projects can prove adaunting task for both experienced and novice stakeholder groups. Some spend weeks, months, or even years struggling to develop a patient engagement in research model when many exist and in several contexts. Those experienced in patient-included research often look for ways to build on past successes or formulate new, innovative methods of engagement. Now there is a tool - The Pathway of Patient Engagement in Rheumatology Research (“Pathway”) -that can help all stakeholders that is specific to rheumatology and considers the unique participatory challenges of rheumatology patient partners. This session will introduce the Pathway, which can help those developing patient-included rheumatology research projects by identifying existing engagement models and resources used in a similar research context and learn how to incorporate these into their project. Identifying initiatives and concepts of engagement already in practice avoids duplication of efforts and strengthens the ability across projects to measure engagement outcomes. Learning more about existing patient engagement models with those providing leadership in these efforts will also increase the potential for future collaboration opportunities.

Learning Objectives:

Overview of the Pathway tool and how using it can improve patient-included rheumatology research project development.
Review the Pathway tool, providing highlights and examples to develop a patient-included research strategy at the collaborator and co-investigator/investigator levels.
Inform health stakeholders looking to include an appropriate patient engagement model for their research project on best practices already established within the rheumatology space.