12S150: Patient Perspectives

Saturday, November 12, 2022

5:00 PM – 5:45 PM Eastern Time

Location: Room 126

All of the relevant financial relationships listed for faculty have been mitigated.

Moderator(s)

Puja Khanna, MD, MPH

University of Michigan
Ann Arbor, MI, United States

Disclosure(s): Cerecor: Consultant (Ongoing); Dyve Biosciences: Consultant (Ongoing); Horizon: Consultant (Ongoing); Selecta: Consultant (Ongoing)

The goal of the Patient Perspectives session is to allow people affected by rheumatic disease to share their journeys and experiences with the thousands of rheumatology healthcare providers who will attend ACR Convergence. Patients will present their own perspectives to address the following question: “What adaptations did you and/or your healthcare team adopt to better care for your health?"

Learning Objectives:

Acknowledge the breadth of strategies that patients engage in to help cope with the challenges of chronic disease.
Describe processes by which patients and members of their healthcare teams actualize innovative solutions to improve patient well-being.
Summarize creative problem-solving techniques by patients on behalf of themselves and the community of others with rheumatic diseases.

Presentations:

5:00 PM – 5:10 PM Eastern Time

The Journey to Collaborative Care and Patient-Centric Educational Opportunities for a Scleroderma Patient
Virtual Speaker: Amy Gietzen, -None- – Bio News
5:10 PM – 5:15 PM Eastern Time

Q&A
5:15 PM – 5:25 PM Eastern Time

Planting Seeds of Self-Advocacy: Increasing Healthcare Engagement in Children and Adolescents Through Arthritis Camp
Patient Presenter: Kaye Anderson, BS – Young Patients' Autoimmune Research & Empowerment Alliance
5:25 PM – 5:30 PM Eastern Time

Q&A
5:30 PM – 5:40 PM Eastern Time

Chronically Catherine: A Sex and the City-Inspired Autobiographical Column for Disabled Young Adults on Subjects We Really Care About - Like Disabled Dating and How Hot Cheetos Saved My Life
Patient Presenter: Catherine Ames, BA – University of Southern California
5:40 PM – 5:45 PM Eastern Time

Q&A